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Being Kylie Earl

Original Air Date: Oct 19, 2024

Kylie suffers from a rare genetic disease called neurofibromatosis, which from birth affected her left eye; she has never been able to see from it, as she got older the plexiform tumors caused her eye to be removed.

Jan 6

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11:09AM

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13 Min

•

2024

•

Documentary

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EXTRAS

Season 1

  • Season 1
  • Season 0
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S1 E9: Teaqua & Jada

On Demand • Original Air Date: Oct 19, 2024

Jada Smoot is a lively, sweet 11-year-old just starting middle school who likes to swim, bike and spend time with her friends; her mother, Teaqua, is starting a new job with United Airlines and enjoys reading.

6 Min

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Available with Freestream

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S1 E7: Brianna

On Demand • Original Air Date: Oct 19, 2024

Brianna Worden has faced unimaginable challenges since being diagnosed with NF as an infant; these obstacles have not stopped her from becoming a cheerleader, a photographer and Miss Teen New York International.

10 Min

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Available with Freestream

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S1 E2: Off the Breaks

On Demand • Original Air Date: Oct 19, 2024

Travis has lived in the fear of breaking his bones most of his life; from the age of two, a tumor caused by a rare disease called neurofibromatosis, has been growing from his spine down his leg.

12 Min

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Available with Freestream

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S1 E1: The Pearson Twins

On Demand • Original Air Date: Oct 19, 2024

Identical twins, Adam and Neil Pearson, are navigating life in South London with a rare genetic disorder, neurofibromatosis; despite their identical DNA, the twins are affected in vastly different ways.

11 Min

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Available with Freestream

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Aiden

Original Air Date: Oct 19, 2024

Aidan Fraser has undergone 20 major surgeries and been on five different chemotherapies in 17 years due to NF; despite the magnitude of this challenges, Aidan is a video blogger, YouTube channel host and CTF staff member.

Jan 6

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6:29AM

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15 Min

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Available with Freestream

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Being Kylie Earl

Original Air Date: Oct 19, 2024

Kylie suffers from a rare genetic disease called neurofibromatosis, which from birth affected her left eye; she has never been able to see from it, as she got older the plexiform tumors caused her eye to be removed.

Jan 6

•

11:09AM

•

13 Min

•

Available with Freestream

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Maddox

Original Air Date: Oct 19, 2024

Maddox Gibson is a fun-loving 5th grader with a big smile who loves Legos and wants to be a chef; in 2017, Maddox was a 10 year-old in China who had been living in an orphanage his entire life.

Jan 6

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6:44AM

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19 Min

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Available with Freestream